I conducted interviews with boys who have Duchenne muscular dystrophy, and the findings demonstrate some of the ways they approach decision-making and develop independence. As well as publishing the research in journal articles, we have used animation to portray a fictionalised setting within which decisions sometimes emerge.
In this film, Shared Decisions, we encounter a mother and son as they negotiate life, it explores how decision-making can be a part of developing independence in the lives of young people who have Duchenne muscular dystrophy. The film acts as a companion piece to In and on their Own Terms, providing further insights on the lives and experiences of disabled young people.
Animator Jeremy Richard provides a warm, graphic style, and musician Wez Allard sets the scene with his compassionate, original music score.
Funded by Manchester University’s Healthier Futures Impact Award.
Thanks to Pathfinders Neuromuscular Alliance for their support.